Improving patients’ quality of life by facilitating access to patient centred outcome information

  • 4,000+

    Clinical outcomes assessments (COAs)
  • 40,000+

    COA translations
  • 300+

    Author questionnaires

ICON is the primary sponsor of Mapi Research Trust, a non-profit organisation dedicated to improving patients’ quality of life by facilitating access to patient centred outcome (PCO) information.

Incorporating the patient's voice into new treatments

Mapi Research Trust promotes scientific approaches in the PCO field and encourages exchanges between academics, pharmaceutical companies, and international organisations around the world in the service of incorporating the patient’s voice into every step of the development process of new treatments.

The leading provider of patient centred outcomes research information

For nearly two decades Mapi Research Trust has been a direct contributor to nearly every translational science research program incorporating patient centred outcomes. The Trust offers free and subsidised access to thousands of independent and academic research programs in over 130 countries every year. Mapi Research Trust contributes 4M€ a year in services that support academic research focusing on the improvement of patients’ lives.

Mapi Research Trust is the leading provider of Patient-Centred Outcomes Research information worldwide:
• More than 4,000 Clinical Outcomes Assessments (COA)
• More than 40,000 COA translations
• A research library with more than 29,000 COAs
• Directly distributes over 300 questionnaires on behalf of their authors