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  5. World Orphan Drug Congress US

World Orphan Drug Congress US

23-25 May 2023 | Gaylord National Resort & Convention Center | Booth # 611 | Washington, DC

Thank you for speaking with the ICON team at World Orphan Drug Congress.

 

We understand the unique strategic, operational, medical and scientific challenges that rare disease clinical trials present, and we invite you to explore how we are leading the way in Rare Disease drug development.

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Patient-Centered Trial Development Toolkit

Participant-focused tools designed to improve study success in rare disease clinical trials

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Factsheet: Accellacare In-Home Services

Bringing the trial to the patient

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Factsheet: Language Services

Full-service translation and clinical translation program management

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Factsheet: Biotech

Developing transformative therapies requires a flexible approach

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Case Study:

Trial decentralisation enhances clinical research accessibility and reduces burden on rare disease patient population

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Case Study:

Overcoming operational challenges and exceeding recruitment timeline in an adult patient population with Fibrodysplasia Ossificans Progressiva

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Whitepaper: DE&I in rare disease - Beyond buzzwords: Diversity, equity and inclusion in rare disease clinical trials

Explore barriers and effective strategies to mirroring the patient community make-up in rare disease clinical trials, challenges that rare disease PAOs are tackling to improve DE&I and the consequences of getting it ‘wrong’ in the clinical stage and beyond

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Whitepaper: Natural history studies to improve drug development in rare diseases

Practical strategies for rare disease natural history studies, patient identification, recruitment and retention

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Whitepaper: Leveraging historical data for use in rare disease trials

Understanding the Bayesian and Frequentist approaches

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Whitepaper: Rare disease registries

Practical ways to build trust and collaboration with patient advocacy groups

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Whitepaper: Crossing the finish line

Why effective participation support strategy is critical to trial efficiency and success in rare disease

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Whitepaper: Cross-border enrollment of rare disease patients

Considerations for planning & conducting global rare disease clinical trials

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On-demand webinar - Rare disease week 2023

Exploring accessibility in rare disease clinical research

Meet Our Experts

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